It seems unbelievable. After a couple of weeks of "growing pains" with this new shunt, I realized a few days ago, I'm now headache free. Of course I'm still on my regimen of about eight prescription drugs to keep headaches and other maladies at bay (with two others on stand-by if needed). However, I feel like I officially can't look for a support group for those in chronic pain any longer :-)
I'm still on the hunt for a support group for "Chronic Illness" or "Adults Who Grew Up With Hydrocephalus." The second might be a little tougher, as I'm at the end of the first generation of hydro kids to make it to adulthood. On the other hand, I don't want to be stuck in a support group with a bunch of women complaining about their experience with a "made up" condition like fibromyalgia. I need to find a group where the adults have had (whatever they have) since childhood, and it needs to be potentially, conditionally, life threatening like meningitis and hydrocephalus.
Maybe a support group for Spina Bifida would work. Like I said, I'm still on the hunt.
I'm still on the hunt for a support group for "Chronic Illness" or "Adults Who Grew Up With Hydrocephalus." The second might be a little tougher, as I'm at the end of the first generation of hydro kids to make it to adulthood. On the other hand, I don't want to be stuck in a support group with a bunch of women complaining about their experience with a "made up" condition like fibromyalgia. I need to find a group where the adults have had (whatever they have) since childhood, and it needs to be potentially, conditionally, life threatening like meningitis and hydrocephalus.
Maybe a support group for Spina Bifida would work. Like I said, I'm still on the hunt.
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