The headache started on my birthday, August 30. I rated it a seven out of ten. The last headache I rated a ten out of ten the pressure from the build-up of cerebral spinal fluid had gotten so bad, it put me in a coma. September 2, I went to a previously scheduled appointment with my neurologist and we talked about the headache. She gave me a six day course of steroids and told me to go and get a C-T scan. The C-T scan showed nothing wrong with my shunt, but did show an arachnoid cyst. ("A WHAT???") I thought. I found out they're brain fluid filled sacs that live in the area between you brain and your skull. The headache continued, but so did my life. It wasn't a migraine, I had no sensitivity to light, no throbbing, just this sense of pressure the size of an orange (maybe a grapefruit) from my hair line to the front of my ears. Sometimes it would creep down to my forehead.
The steroids helped for two of the six days I was on them, then the headache returned to a level seven.
By the beginning of the third week of the second worst headache of my life, I thought I would hit my head against the wall if it would do any good, but I knew it wouldn't.
By the fourth week, the pain level at least lessened, but a new feature made it more awkward. It was painful to lie on the back of my head. I e-mailed my neurologist and asked if the cyst could possibly be growing, as I had discovered its existence was noted in an MRI I had in 2003. I also told my physician that I asked my Mum if this was something I'd had since I was born, and she said no physician had ever mentioned it to her when I was an infant.
My neurologist again said exactly as she said before, nothing more, nothing less. The cyst looked
"stable."
My neurologist then gave me a three day course of two prescriptions, an NSAID (that doesn't react nicely with another of my prescriptions,)
The other is a phenothiazine. This class of drug is normally used to help with nausea for Cancer patients but remember I have no nausea, (this isn't a migraine). Hilariously enough, nausea is one of many unpleasant side effects. (Huh?) Between the two I can expect: drowsiness, lightheadedness, dizziness, blurred vision, upset stomach, nausea and vomiting. Lovely.
Alternatively, this compound is used to treat mental instability (!!) some kind of red blood cell
disorder and last but not least neurogenic pain.
Ah, now we're getting somewhere, yes I'm in Pain! However, the nausea-stopping, mentally stabling, red-blood-cell correcting drug, treats pain caused by a dysfunction of the nervous system. Wouldn't a cyst in your brain, that is of unknown age or origin, that you more than likely didn't have at birth be considered a DYSFUNCTION OF THE NERVOUS SYSTEM?????
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